Living with HIV #Bicho and Me: In the medical world, containment is everything

The first time I saw an infectious disease specialist, she tried to bribe me. She told me my tests were fine, but that I should get them done at a lab she trusted, and that if I mentioned her name, I'd get a discount. I had all the paperwork, but I didn't know anything—not what a CD4 count was, what a viral load was, nothing.

Script: Lucas Fauno Art: Jon Amarillo       The first time I saw an infectious disease specialist, she tried to bribe me. She told me my tests were fine, but that I should get them done at a lab she trusted, and that if I mentioned her name, I'd get a discount. I had all the paperwork, but I didn't know anything—not what a CD4 count was, viral load, nothing. I left crying and called a biochemist friend. I asked her for help. From then on, professionals started appearing whom I could ask questions. Today, when I meet someone with a recent diagnosis, my first piece of advice is: "Find an infectious disease specialist you can ask EVERYTHING." The doctor's office should be a space for disagreeing, sharing, learning, and evolving. We're not patients. I don't have patience. I demand a cure. But in the meantime, my life must become a quality of life. And I couldn't report that first infectious disease specialist who tried to profit from my confusion. First, because I was so shocked I couldn't do anything, and then because when I looked for her, she had passed away. My infectious disease specialist has stopped seeing patients. We shared many conversations, disagreements, and shared progress. I have to find a new doctor again, but I'm clearly not the same person I was before. If you have any questions or concerns about the professionals treating you, you can call 08003333444. This is the HIV/AIDS hotline of the Ministry of Health.

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